Getting My New Wheelchair


A year ago I was speeding through the forest, racing through puddles and loving the freedom of moving all by myself in a super duper wheelchair . I was road testing a very special powered wheelchair called the Dragon from Dragonmobility. My condition had deteriorated enough that I was no longer comfortable on my scooter and
Read More »

When you have a complex illness you can spend half your life in hospital. Long and frequent inpatient stays are common, agressive and difficult treatments can be tough on your emotional wellbeing, and multiple appointments a week can be exhausting. It is hard work living with a complex illness because many doctors have very little experience
Read More »

Sometimes Chronic Illness Wins


Well, what a bundle of fun I’ve been having this past month! My chronic illness has been beating me and as a result I’ve not had chance to do any blogging. Recently, my health has succumbed to a bombardment of complications and deteriorations. EDS can cause issues with the brain and spine due to weak
Read More »

Three years ago I was bedridden and unable to sit up on my own.  I had gone against my doctor’s advice and tried to get back into work but it didn’t go quite to plan.  Starting work as a self-employed artist I pushed my body too far trying to get my business off the ground. 
Read More »

It’s week two of our one-month austere lifestyle challenge and we’re already saving money. Mrs Wifey and I started last week full of hope and ambition ready to tackle any spending temptation with determination. We were ready to have our will pushed to the limit (mine especially because it’s pretty much non-existent) but we’ve both
Read More »