Author: Carrie



Why Life-Saving Surgery Is Essential

In April I made the journey to London to have the all important upright MRI scan of my upper spine. I’d been struggling with symptoms for years including sight loss, memory issues, cognitive problems, poor balance, frequent falls and deterioration in my mobility. I knew deep down something wasn’t right yet it took the kindness
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Why It Took 35 Years To Diagnose My Autism

When I was four-years-old a speech therapist told my mother that my inability to speak would right itself. Her GP told her not to worry about my severe sleep problems and that I was simply a fussy eater for only eating jam sandwiches and yogurt. The self-harm and eating disorder I developed as a teen
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Why You Shouldn’t “Light Up Blue” For Autism

On April 2nd 2017, people across the globe will be lighting up blue and taking part in this year’s annual Autism Awareness Day. On the surface this international campaign appears to be a good thing, aiming to raise awareness of a condition that most people have heard of but very few really understand. Research is
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Getting My New Wheelchair

A year ago I was speeding through the forest, racing through puddles and loving the freedom of moving all by myself in a super duper wheelchair . I was road testing a very special powered wheelchair called the Dragon from Dragonmobility. My condition had deteriorated enough that I was no longer comfortable on my scooter and
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Why I’m Using My Complex Illness To Help Others

When you have a complex illness you can spend half your life in hospital. Long and frequent inpatient stays are common, agressive and difficult treatments can be tough on your emotional wellbeing, and multiple appointments a week can be exhausting. It is hard work living with a complex illness because many doctors have very little experience
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Sometimes Chronic Illness Wins

Well, what a bundle of fun I’ve been having this past month! My chronic illness has been beating me and as a result I’ve not had chance to do any blogging. Recently, my health has succumbed to a bombardment of complications and deteriorations. EDS can cause issues with the brain and spine due to weak
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A Visit To Calvert Trust

Last week, Mrs Wifey and I visited Calvert Trust in order to give my wobbly bones some good old hydrotherapy. Calvert Trust specialises in offering accessible holidays and activities and is located right next to Kielder reservoir which is ideal for me when I need some good old water-based physio. Swimming is great for building
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When Someone Shows They Understand Your Chronic Illness

When a beauty party invite landed in my Facebook notification thingy last week I clicked the Going button and scribbled the details in bright red pen all over the kitchen calendar. One thing I have missed since moving to the middle of nowhere is the social side of life. Ironically I’m not a very sociable
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Writing With Spoons – How To Be A Freelance Writer With A Chronic Illness

Three years ago I was bedridden and unable to sit up on my own.  I had gone against my doctor’s advice and tried to get back into work but it didn’t go quite to plan.  Starting work as a self-employed artist I pushed my body too far trying to get my business off the ground. 
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