Carrie’s Fund is about helping to raise funds to cover the increasing medical costs my complex condition brings.
Thanks to my stretchy-gooey-fragile connective tissue I have legs that wobble, the stamina of a sloth and an ability to facepalm the floor numerous times a day. I have complete intestinal failure, am fed directly into my heart (TPN), my upper spine is collapsing which is crushing my brainstem, I am losing my sight and my immune system is breaking down – my whole body is literally falling apart.
Sadly, there are many aspects of my condition which are not recognised or treated on the NHS or in the UK. As a result I have to fund a lot of my medical care, pay for expensive equipment and in the near future I may need to fund surgery and treatment in other countries
Carrie’s Fund is to help ease some of the burden of these extensive costs. Some of the things that the fund has paid for and will help pay towards in the future include :
- Specialist powered wheelchair
- Upright MRI scans in London for spinal instability (CCI)
- Consultations with CCI neurosurgeon in Spain
- Travel fridge to store TPN to allow travel away from home for appointments and short breaks.
You can donate to my fund here.
You can read a little of my story here.
You can also follow my fund updates on Facebook.