Category: Spoonie Life



Why Life-Saving Surgery Is Essential

In April I made the journey to London to have the all important upright MRI scan of my upper spine. I’d been struggling with symptoms for years including sight loss, memory issues, cognitive problems, poor balance, frequent falls and deterioration in my mobility. I knew deep down something wasn’t right yet it took the kindness
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Why I’m Using My Complex Illness To Help Others

When you have a complex illness you can spend half your life in hospital. Long and frequent inpatient stays are common, agressive and difficult treatments can be tough on your emotional wellbeing, and multiple appointments a week can be exhausting. It is hard work living with a complex illness because many doctors have very little experience
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Sometimes Chronic Illness Wins

Well, what a bundle of fun I’ve been having this past month! My chronic illness has been beating me and as a result I’ve not had chance to do any blogging. Recently, my health has succumbed to a bombardment of complications and deteriorations. EDS can cause issues with the brain and spine due to weak
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When Someone Shows They Understand Your Chronic Illness

When a beauty party invite landed in my Facebook notification thingy last week I clicked the Going button and scribbled the details in bright red pen all over the kitchen calendar. One thing I have missed since moving to the middle of nowhere is the social side of life. Ironically I’m not a very sociable
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Writing With Spoons – How To Be A Freelance Writer With A Chronic Illness

Three years ago I was bedridden and unable to sit up on my own.  I had gone against my doctor’s advice and tried to get back into work but it didn’t go quite to plan.  Starting work as a self-employed artist I pushed my body too far trying to get my business off the ground. 
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